Industry-academic partnership adds new dimension to treatment of Pulmonary Arterial Hypertension with mobile app
Johnson & Johnson Innovative Medicine, Science Foundation Ireland research centre Connect, Maynooth University and Mater Misericordiae University Hospital have announced the release of a health app for patients living with pulmonary arterial hypertension (PAH).
Developed by Health and Care Innovations, ConnectPlus has been designed in collaboration with nurses, clinicians and PAH patients, to ensure it closely supports the local pathways of care, patient needs and challenges faced by people living with PAH which will be optimised over time to incorporate user feedback.
The app’s integration into the patients’ care routine is expected to improve the quality of life of patients, empowering them to self-manage elements of their condition through access to credible and localised information about the management of their condition, their treatment pathways and online support services.
PAH is a rare form of pulmonary hypertension, which is high blood pressure in the lungs with an annual incidence rate of 3.11 patients per million of the total population of Ireland.Its symptoms include breathlessness, fatigue, dizziness, fainting or passing out), and chest pain.
As the disease progresses, some patients may experience constant shortness of breath or breathlessness and fatigue so that even simple tasks, such as getting dressed and walking short distances, become difficult which can severely impact a patient’s quality of life.
The initial rollout of the app will benefit up to 250 people living with the rare disease who attend the Mater Misericordiae University Hospital – the national centre of excellence for PAH.
Professor of Innovation at Maynooth University and Digital Health Lead at Innovation Value Institute and Connect Investigator Martin Curley said: “Digital transformation has emerged as a vital catalyst in optimising clinical pathways for both patients and healthcare professionals. By embracing technology, we are unlocking new opportunities for seamless collaboration, efficient data management, and personalised healthcare experiences. This initiative is a great opportunity to empower patients as well as healthcare providers with the tools and insights needed to deliver timely and effective care, ultimately transforming the way we navigate and improve patient outcomes.”
Prof Sean Gaine, consultant respiratory physician at the Mater Misericordiae Hospital, said: “Our teams are actively involved in shaping this innovative app to ensure the technology will best suit the needs of our patients and support our goal of empowering people living with PAH to play an active role in the management of their disease. We are delighted to deliver this new innovation to help patients better manage their condition.”
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